Google
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Kyriako Damavoletes Talks About the Stigma of Sickle Cell Disease
Kyriako Damavoletes has HbS beta thalassemia. This means he received a HbS gene from one parent and a beta thalassemia gene from the other. Both Damavoletes and his younger sister have HbS beta thal. He knew he was different by about age 4 or 5, but it wasn’t until middle school that he truly understood the impact the disease would have on his life.
“At about age 12 or 13, I realized this disease would carry a lot of weight in my life. I saw my older siblings driving and getting ready for college. I thought to myself, ‘Am I going to be able to get a license, go to college, have a job? Like everyone else?’ I just wanted to have the chance others had.”
All grown up now, with an education and license to drive, Damavoletes works in the field of information technology.
+myBinderRelated Content
-
Sickle Cell Community-Wide Support & Empowerment Group (Nov)Sickle Cell Community-Wide Support &...
-
Roland B. Scott Memorial Symposium: I Want Somebody to LoveRoland B. Scott Symposium on Sickle Cell...
-
Today’s Faces of Sickle Cell Disease: Tosin OlaDuring a long hospitalization in 2005, T...
-
When Pain Can Be Eased by Drinking Enough WaterWhen he was only seven, and on holiday a...
-
Today’s Faces of Sickle Cell Disease: Marqus ValentineWhen Marqus Valentine went to junior col...
-
Women with Sickle Cell Disease and Preconception Care: What to Know Before Getting PregnantWhether you are planning to get pregnant...
-
Patient Perspective: The Journey of Pain in Sickle Cell Diseasehttps://www.youtube.com/watch?v=F4raFO0e...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
